Okay: Part Two

Though I am categorizing this as a story, it is creative nonfiction — based on real events. Names have been changed to protect privacy. Each of us approaches and responds to death uniquely. I want to honor that particularity.

Over the last three years, I visited Sarah about every couple of months.  I’d call or email a day or so in advance, and we’d agree on a time in the early afternoon.  Sarah didn’t see well or move quickly, so I would ring the doorbell, peek in the window to see her sitting in her usual chair awaiting my arrival, and then I’d open the unlocked door and announce myself.  “It’s Moriah.”

“Come in, come in.” 

I’d settle in the chair opposite her, and she’d ask how I was.  I’d tell her exactly what was on my mind at that moment, no matter how personal or difficult it was to admit or express.  Her head shook, and her voice quavered more and more as the months passed, but I listened closely to every word she said in response. I had come to rely on her utter sincerity and genuine concern. I was convinced Sarah, who had only recently become my friend, understood and cared deeply about me.  When I was finished opening my heart, I’d ask about her, and she would tell me—honestly but without drama—the health problems and every day difficulties she was experiencing; not in a complaining fashion, but matter-of-factly, always ending with gratefulness for the simple gifts in her life that brought her happiness.

I learned that Sarah was a Buddhist of Tibetan lineage and that she meditated regularly.  I meditate too, so that created a bond between us.  She told me about her teacher and some of the practices she had learned.  She joined me several times to meditate with a local mindfulness group. She always asked me about my writing and insisted on buying my novel when it was published.  I don’t know if she was able to get someone to read it to her. Her near blindness prevented her from doing so herself.

Sarah was so quiet and undemanding that people may have forgotten she lived in the neighborhood.  She would tell me she felt lonely and she was hungry for news about the neighbors and the goings-on in our retirement community.

She found workarounds for her limitations, though.  A personal assistant helped her with email, bill-paying, and the ubiquitous paperwork that inundates us all. Her daughter, Riley, came every evening to have dinner with her and help with anything that Sarah could not do on her own.

About a month ago, we noticed more traffic in and out of Sarah’s driveway. Riley began coming during the day, as well as in the evenings. Then she started staying overnight also.  I stopped in for a short visit to learn that Sarah was on hospice and declining rapidly.  Riley led me to Sarah’s room, where she was stretched out in a recliner with a cool cloth on her forehead.  She clasped my hand, told me how much I meant to her, and thanked me for our friendship.  She knew her time was short and was ready for death. We were both aware that this was, perhaps, goodbye. 

But it was not. She lived for another week or so, and I saw her a few more times.  The last one was the evening of her death. She was unconscious, breathing very lightly and gently.  While her daughter took a short break, I played a Buddhist chant, hoping that Sarah could hear and understand the reassuring words.  In the early morning, while I slept, a text came in that she was gone.  I saw it as soon as I awoke and rushed to her house in my pajamas to see her one last time, standing by her bed, kissing her smooth forehead and gazing at her peaceful face.

After that, Riley came and went from the house, handling the tasks one does after death: taking care of property, family, and financial matters with the help of Sarah’s personal assistant.  When I was finally able to catch her alone one evening, just before Christmas, she showed me the memorial altar she had lovingly and sensitively created around Sarah’s colorful tree. In the center sat her urn, carved with a Tree of Life.  Surrounding it were photographs and mementos from her life, several that I recognized, and one, a Buddha card I had given her a while back.  The altar was characteristically Sarah—unpretentious and beautiful. 

Sarah told me she was okay after Joe’s death, and I am okay after hers.  Each morning for the forty-nine days of her journey through the bardo or transitional state, I am ringing a bell and saying this gatha in her honor: “Body speech and mind in perfect oneness, I send my heart along with the sound of this bell.  May all who hear it (especially Sarah) be awakened from forgetfulness and transcend all anxiety and sorrow.”  Because everything is impermanent, I am letting Sarah go, along with the bell’s vibrations, into the universe on her journey home to the Source of Life.

The End

Practicing for the Big Let Go: Love

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I have mentioned here before that I meet monthly on Zoom with a group of women who talk about our experiences of aging and our musings on death. We explore our stories, insights, discomfort, and fear about the inevitable decline of our bodies and the certain end for us all. A few weeks ago, we had a courageous discussion about dying, our own and that of those we love. Not surprisingly, most of us expressed more fear about the possibility of a painful, demeaning, drawn-out dying process than about the moment of death and what, if anything, comes after it. We ventured onto the delicate topics of Death with Dignity and Physician-Assisted Death, which is legal in some countries, including Canada, where I was born.

I told the story of my Canadian cousin’s husband’s death. I’ll call him Leigh and her Meredith. He suffered for years from debilitating cancer, which was diagnosed just after his retirement when they had planned finally to begin their travel adventures together. Leigh, supporting and delighting in Meredith’s wanderlust and love of natural beauty, encouraged her to go exploring on her own and with their daughters. He enjoyed her travels vicariously and enthusiastically. However, as time went on, she traveled less as he needed more care and experienced frequent hospitalizations for treatment and long energy-less periods confined at home.

Though he tried his best not to be a burden for his family and patiently bore the symptoms of his disease, it troubled him that Meredith’s life centered around him and his ups and downs. He recognized her profound sadness as she watched him suffer, helpless to alleviate it, and worried about how she would cope with what they had good reason to believe would be a painful and degrading end. As the pain increased and his energy ebbed, recognizing his own and Meredith’s exhaustion and the toll his suffering was taking on her, he decided to apply for MAID, Medical Assistance in Dying. Canadian law provides this option for individuals who are terminally ill or in intolerable pain.

Together, Leigh and Meredith navigated all the legal requirements and preparations and finally arrived at the day of his death. Meredith and both of their adult children gathered around his hospital bed, said their goodbyes, and expressed their love and gratefulness for each other. Medical personnel administered the necessary medications, and quietly and peacefully, Leigh went to sleep and then ceased to breathe. Meredith experienced the meticulously planned and compassionately orchestrated end as a gift of love Leigh gave to himself, her, and their daughters. Years later, she still speaks movingly of this gift and her memories of their last intimate moments together. She says Leigh was right; a horrible end would have been much more difficult for both of them to endure and for her to recover from. Instead of her beloved in agony, her last memory of him is tender and peaceful.

I did not tell the story of my mother’s death in that morning’s discussion group. In her early eighties, she was diagnosed with pancreatic cancer after a long period of ignored symptoms and then months of waiting for tests and doctors’ appointments. The specialists said that her only hope of survival was a drastic surgery in which her abdominal organs would be removed from her body to make the tumor on her pancreas accessible for excision. Then, they would replace the organs, and everyone hoped everything would work properly again. It was a risky option back then for even a younger, more fit person, but it was a long shot for someone in their early eighties. By demonstrating determination and pestering her doctors, she got them to agree to perform the surgery, even though success was extremely uncertain. She wowed them on the pre-surgery stress tests, proving that she was strong enough to withstand the operation, but as the day approached, she was anxious and irritable. 

One evening, I asked her why she was willing to put herself through such trauma for perhaps just a few more years of extended life when she could not count on a full recovery or high-quality health. She responded without hesitation, as though she had already asked herself that very question and was certain of the answer. “It’s for your father,” she said. “He will be too lonely when I die. But don’t tell him.” I didn’t press her further. She and my dad did not have an overtly romantic relationship. I can’t remember her ever expressing feelings of love to anyone. On the contrary, she tossed criticism liberally in all directions. But they had been married for more than fifty years, and their lives were so intertwined that she knew her death would be his undoing. 

She had the surgery. The team opened her up and saw an abdomen riddled with cancer, so they closed her and sent her to recovery. The surgeon told us the outcome and gave a prognosis of one to three months. She lived through the night and, early the next morning, experienced massive internal bleeding, was taken back to surgery, and died of heart failure. My father’s sobbing heartbreak is seared into my memory, as is the sight of his forlorn, defeated figure standing outside her empty bedroom at home that evening.

I’m not sure if my mother ever told my father that she loved him, but she knew how much he loved her, and she was willing to endure a horrendous surgery out of compassion for him—her gift of love. He lived for five lonely years after her death, making the best of each day but missing her profoundly. It was tough to watch.

Another member of the aging-and-death discussion group shared a glimpse into a recent awakening. She’s been seeking understanding of love, what it is, how it feels, how it manifests, for quite some time. Recently, she and her husband were walking during an outing. He is older than she and is slowing down slightly. She found herself dropping back to match his slower pace and wondering at the tender willingness she felt as she did so. Could this be love, she asked herself—some facet of love? 

As I draw nearer to my own inevitable death—The Big Let Go—I ask myself what will be most important to me, and I know instantaneously and completely that it will be love. Everything else will fall away, and the only important activity will be loving—giving and receiving it. Knowing this, shall I start to practice now? Let go of all but love, in every moment and situation, and lean into loving—fall into it, and trust it utterly.